Monday, October 1, 2012

Life With Crohns

I'm not usually a complainer,but lately it's hard... I am beyond grateful that I wasn't sick in China, but having had a couple years with nothing more than a few minor flares just spoiled me a little. I was amazed that we made it through the adoption stress without a flare since thats the kind of stress that usually causes this. Starting in July, the flareups began again. I was able to get a treatment in August, since I can only get one every eight weeks. August was good. Early September, another flare started. This one was definitely worse and has been ongoing for three or four weeks now. Besides all the intestinal junk, my mouth keeps breaking into sores, and various joints are flaring as well. My tailbone hurts so bad that it actually feels broken, which makes hoisting a two year old up and down excruciating at times, but I'm not about to tell her no, because that's the main thing she needs right now. I haven't slowed down my schedule much, because I do better if I just keep going. As bad as it is, I think back to the days before I started treatment and remember how I felt like I was going to die. There are days though when I dont think I can manage... Today I am at the hospital getting my Remicade infusion and praying for a some good weeks ahead. I used to hate doing this every other month, but when you're hurting, you can't wait to get here. Really hoping this will get me back into remission. I know that this is all for a purpose and our struggles are meant to refine us, so I'm writing all this with optimism, but I'm really, really missing life without Crohns!

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