Monday, December 3, 2012

UL Neurologist visit

Today was Laikyns consultation for the her epilepsy diagnosis. We met with Dr. Anna Ehret who was very kind and informative. She told us basically what the pediatrician expected her to. She does not like to treat with the medicine Laikyn was on in China (Valproic Acid) due to the harmful side effects. She doesn't want to change her yet until we do more testing. Instead she ordered blood work so we can keep an eye on her liver. She is on a very small dose, so I'm hoping a few more months wont hurt. Since Laikyn had a slight abnormality in one of her CT scans in China, the first step is to do an MRI as soon as possible. Looks like the soonest they can get her in is January and it will be under sedation at Kosair Childrens Hospital. The next step will be an EEG after she turns three. It looks like at least June before this can be done. Her EEG in China was normal, so if this is the case again, we will begin to wean her off of the meds when that is established. If after testing, we determine she does have epilepsy, she will be switched to a safer medication at that time. The best part of the day was how great she did for her blood draw. They use a numbing spray at Kosair lab, so she didn't even know she was hurt until it was almost over! Awesome stuff! Just thankful to finally be started on finding some answers to such a strange medical situation! Praying that my girl is okay at the end of all this! I know God has had His hand on her each step of the way!

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